Welcome and congratulations if you have a new baby or a baby on the way who has Down’s syndrome. We appreciate this will be an emotional time and you may have huge feelings and many questions. Each family circumstance is unique, and how you feel is unique as you embark on this new and perhaps unexpected journey. It can be a real rollercoaster and it is both understandable and natural to be experiencing all sorts of emotions – sometimes from hour to hour or minute to minute. Making space for your feelings and finding ways to support yourself and loved ones through this time is the kindest and most helpful thing you can do. All of us who have children with Down’s syndrome remember those early days and we hope the resources on this page will be useful to you.
Our top tips would be to:
Find accurate and balanced information, we provide links here to trusted sources. Information on the reality of bringing up a child with Down’s syndrome may be different to your current expectations or what you have been told by family, friends and even medical professionals.
Surround yourself with as much emotional, practical and professional support as you can. Often our babies are well provided for with all sorts of arrangements for assessments, therapy and medical support when they are little, but parents’ needs can get overlooked. As well as from family members and friends, there are lots of ways to access support and you will find what works best for you. You may wish to talk to someone locally who has a child with Down’s syndrome and we can certainly facilitate this if you would find it helpful. Press the contact us button. There is a helpline at the Down’s Syndrome Association for questions and general support and advice.
